Symptoms & side effects
Fatigue, itching, night sweats, concentration: record in a minute a day how you feel, and see which days were harder — and why.
By patients, for patients
MPN Journal
Find what actually helps you feel better
Living with an MPN brings new questions every day. Track your symptoms, lifestyle and blood values and discover the patterns behind your good and bad days. That way you and your doctor know what really reduces your symptoms.
- 100% free
- Anonymous & privacy-friendly
- No app needed
- Available in 12 languages
12languages
100%free & anonymous
24/7access on any device
Features
Everything about your MPN in one place
To see how your lifestyle affects your symptoms, you have a lot to remember: how you slept, what you did, how you felt. Your journal keeps it together, so you don’t have to.
Medication
Keep track of which medicines you use and at what dose, and how they suit you, so you can discuss effects and side effects with your doctor with confidence.
Lab results
Add your blood counts after every check-up and see trends instead of loose numbers on a lab slip.
Lifestyle
A walk, a bad night, a stressful week: discover what helps you feel better — and what doesn’t.
Mental well-being
An MPN affects more than your body. That’s why we also ask about psychosocial symptoms every time you log. Over time, this shows you how you are really doing.
Reports for your doctor
One clear overview to bring to your haematologist — so those ten minutes in the consulting room are about you.
How it works
Start in three simple steps
Sign up anonymously
You register through a privacy layer that never shares your real identity with us. Your data is stored without a name, e-mail or date of birth attached — so it can never be linked back to you, even if our systems were ever breached.
Track at your own pace
One minute a day or five minutes a week: you decide what you track and how often. Skipping a day is perfectly fine.
Discover patterns and share
See your weeks side by side and spot what has changed. Easy-to-read charts reveal connections that help you reduce your symptoms. Then share a clear overview with your care team.
Everyday Better
The 30-Day MPN Challenge
Developed by patients for patients, the challenge helps you take charge of your lifestyle, reduce your symptom burden and feel a little better every day. For 30 days you receive short interactive exercises and insights every day: a brief explanation, a moment of reflection and two practical assignments — one short and one longer — so you can choose what fits your day.
- Based on the scientific method of the international bestseller “The Hamster in Your Brain”, written by two physicians
- Available in 15 languages
- Completely free — and you can take part anonymously
- Missed a day? No problem, continue at your own pace
Community & research
Part of a worldwide MPN community
MPN Journal is part of MPN World and was developed in collaboration with the Global MPN Scientific Foundation. By keeping your journal you gain insight for yourself — and your anonymised data helps researchers improve MPN care and outcomes around the world.
More information will be available soon at www.mpnuniverse.org
- Your anonymised data contributes to international MPN research
- Developed together with patients, physicians and researchers
- Presented to the international scientific community
Are you a healthcare professional?
Recommend MPN Journal to your patients and receive structured, patient-reported data at every visit — securely and anonymously.
Support
Support MPN Journal
MPN Journal is part of MPN Universe, a non-profit patient association that keeps this journal free for everyone. Your donation helps support MPN Journal and the wider MPN community — you'll be taken to MPN Universe to complete your donation.
Continue to MPN Universe →Our story
By patients, for patients
MPN Journal was created by John Hoogland, Dolf van den Berg and Remco van Haaren — all three living with an MPN themselves. Inspired by the daily challenges of life with a rare blood cancer, they built the tool they wished they had: simple, private and genuinely helpful.
“We built MPN Journal because we know how much difference it makes when you arrive at your appointment with a clear story.”
The MPN Journal team
Privacy
Your privacy comes first
No personal details
We never store your name, address, phone number or date of birth.
Anonymous login
An e-mail address is all you need to sign in — nothing more.
De-identified data
Your entries are stored de-identified and are only used for research in anonymised form.
You stay in control
Export or delete your data whenever you want.
FAQ
Frequently asked questions
Is MPN Journal really free?
Yes. MPN Journal is completely free for patients, made possible by the MPN community and its partners.
Do I need to download an app?
No. MPN Journal is fully web-based, so it works on any smartphone, tablet or computer — no installation needed.
Which languages are supported?
MPN Journal is available in 12 languages: English, Dutch, German, French, Spanish, Portuguese, Italian, Danish, Finnish, Norwegian, Swedish and Polish.
Who can see my data?
Only you know which data is yours. Your data is stored anonymously, with no identifiable information attached, and no third party — including researchers — ever gets access to your individual data. We may share aggregated, statistical insights to support MPN research, but these can never be traced back to you.
Which conditions is it for?
MPN Journal is designed for people living with a myeloproliferative neoplasm, such as polycythemia vera (PV), essential thrombocythemia (ET) or myelofibrosis (MF).
I have little energy. How much time does this take?
A minute or two a day is enough — and less is fine too. The journal adapts to your pace, not the other way around.
Start small: one minute a day
Free, anonymous and set up in two minutes. Every entry makes your story clearer — for you and for your doctor.
Register now